Day 301
Tuesday, March
18, 2014
Physical
DH is definitely
going through a phase of sleeping a little less, and not sleeping as soundly as
he had been. I can’t tell if it has to
do with how his mind is working or not.
Last night (Tuesday night) he woke around 2:00 and was going to “get up
and turn off the red light” .. the light that indicated there is power to the
TV! It wasn’t too hard to convince him to
go back to sleep, although he claimed he hadn’t slept at all yet.
He dozed off
and on through the afternoon, but not for more than an hour or so at the most
at one time. He totally refused to eat
or drink anything after his pills .. not even the little sweet oranges. During the afternoon, after waking from a np,
he called me and wanted me to “get him up” so he could go see what was behind “that
door” (which was actually a window). But
he did not push the issue once I told him it was a window.
He has not
gotten adamant about any of the things in his head recently, but they are very
constant. If I do try to explain
something .. for example, that we’re not “going anywhere” because we’re home ..
he will simply continue whatever he had been saying as if I had never
spoken. I have learned that in some
cases, if I “go along” with whatever he thinks is real, sometimes it makes
things worse because he simply can’t let go.
It’s not like he’ll go to sleep and wake up “somewhere else”.
He has also
not needed a “major clean up” for 2 days.
That’s good for me, not so sure about for him.
People:
The CAN was
here early. During the afternoon the
Social Worker called, and came by for a visit.
I’m never completely sure why she comes .. we just talk about random
stuff, and not a lot of it about DH.
But I enjoy her company (when I don’t feel like she’s in a big
hurry). The supply order finally got
here about 5:00.
Emotions:
DH said at
one point he didn’t want to spend all his time “in one place”. I don’t even know if he meant the bed, or the
room, or what. But he articulated
something tht I’ve been concerned about.
The nurse believes he should be completely bed-bound (at least in part
because she believes it’s dangerous for me to be lifting him since he’s so
heavy). I understand that; but the
problem is, his mind doesn’t “match” his physical abilities. It seems like most of the time lately he’s
reasonably content to just stay where he is.
At least some of the time he’s not really content, but accepts that I’m
being mean to him and not letting him get up.
The scary part is the times he is totally convinced he can get up and do
whatever he wants, but just needs me to “help” him get up … or “open the gate” ..
or something. And when he’s in one of
these phases where he’s not sleeping as much, he gets bored. Well, I can understand that too. When his mind is going off on trips, I guess
he entertains himself sort of. But there
are times when there’s nothing but the TV, and nothing on it interests
him. Even if I got him up .. even before
we changed things around … he still was only sitting in his chair and mostly
going back to sleep.
He’s been
partly accepting that he needs to avoid sitting up for the rash to heal; but it
is getting better, and I don’t think I’m going to be able to get by with that
much longer. I can tell him that he’s
too heavy for me .. but his mind tells him he doesn’t need my help, and so if I
refuse he gets either angry or tries very hard to do something for himself that
he’s not actually physically able to do
This morning
(Wednesday) he seems to be having trouble staying asleep. He will have to get up soon because it’s
clinic appointment day (and it seems like it’s a week earlier this month for
some reason). It’s yet another nasty
gray cold day, raining off and on. I
hate to have to take him (or myself!) out in this weather; but as long as it’s
not actually raining, we’ll just have to manage.
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