Day 291

Day 291

Satursday, March 8, 2014

Physical:

This was another stay in bed all day kind of day, so a bit easier physically on DH (and me).  He did not say or do anything indicating he wanted to get off the bed, and was content with the explanation that laying down (as opposed to sitting in the chair) on the alternating pressure pad would help the rash on his butt at least not get worse.  Anyway, he mostly only slept.  He managed to wake enough around late morning for me to give him his drink and pills.  I cranked the bed so he was sitting up, and turned on the TV.  Then I took him a piece of raspberry Danish.  He fell back to sleep sitting up with the Danish untouched on his lap.

I kept checking on him all day, but did not disturb him when he was sleeping (waking him up seems to make the dementia worse – as opposed to him just waking up by himself).

The evening got a little “rushed” so I was late getting dialysis set up (but since it’s now Sunday morning, it doesn’t matter too much).  I fixed a nice hamburger steak and sweet potatoes; but he only ate about half and didn’t want any more.  He did drink another protein drink with a pill at bedtime.  It was a little late, but by 9:00 he was ready for me to turn off the TV and lights.

He slept through the night, but was awake around 6:30 (actually, only 5:30 according to what time he went to bed; but DST began last night).  He apparently was back in the warehouse again, and I had to go in twice to get him back under his covers and settle down.

People:

I had long phone conversations with DSS and with a GF, but we did not see anyone.  His sister did not come as she said she would, but his other sister is sick so she might have been at the hospital with her sister.

Emotions:

This was a crazy day.    It started well .. much less stressed than the days I have to be “presentable” by 7:30.  I was able to take my time, move at my own speed  .. and I got everything done that I wanted to (including mopping the kitchen, vacuuming the entire house, cleaning the bathroom, changing the litter boxes, bagging up all the trash, putting away all clean laundry).  And I was done by noon.  But the afternoon was spent pacing again, because DH’s sister had said she’d come over to visit.  In the late afternoon DSS called, and he talked for an hour!  He claims he loves it on the rare occasions he has the house to himself .. but it seems to me he gets bored or lonely!  After he called,

Just before he called I had put supper in the oven, and had gotten started on the dialysis.  After talking to DSS, I got DH his supper, and worked on the dialysis a bit more.  Then a GF called, and we talked for another hour!  I was glad to talk to her (many days I have no one at all to talk to), but then I did have to rush a bit. I was later than usual getting dialysis set up, and not sticking to my “schedule” tends to make me a little on edge.  And DH never ate more than half his supper, after pushing it around the plate for an hour.  He just seemed to stay very drowsy and his speech at times was a little slurred.

It was harder than it should have been to unwind and let myself relax.  I need to be better at “go with the flow”, not so rigid about my stupid “schedule”.  But sometimes that’s the only thing I have any control over, and it’s just too scary to completely let go and not know what will happen when, or what I’m supposed to be doing.

I feel a little on edge this morning, , and don’t really have a good reason.  I would say it’s the change to DST  .. always takes a bit of adjustment.  But it’s cloudy AGAIN  so hard to tell if it’s *supposed* to be daylight by now anyway. 

Maybe I just didn’t get as much sleep as I thought I did.  I hope if I go on and get busy with something (take a shower, feed the critters, set up next week’s pills) I’ll settle down.