Day 282

Day 292

Sunday, March 9, 2014

Physical:

This was a fairly good day, other than a bit of confusion.   While that is normal, it seemed to make him more anxious.   I’ve been trying to keep him in bed most of the time, a lot because of the rash on his butt.  When he sits in the chair, he really doesn’t stay long before he starts complaining about hurting.   But DSS got him up anyway .. and of course I had to get him back to bed.

He ate a little better for supper, but not much.  He again refused the Danish and any snacks too.  It was a bit rushed getting dialysis set up and going plus his supper, but in the end everything got done and he slept well through the night.

He woke around5:00, but went on back to sleep.  Between then and 7:30 he was restless and kept waking up; but now(Monday morning) he seems to be sleeping well.  He did ask for another blanket, so probably (especially form where he keeps throwing the covers off) he was a bit too cool.

People:

DSS, TGF, and all 4 boys came, but not until 4:00 or so.  We did a quick grocery run (no med refills were needed); and when we got back she went through the backed umail.  She had to go somewhere else, so went on … no visiting, no supper, etc.  DSS got DH out of bed (as mentioned aboe), so when we got home I had to get him back to bed.  DSS apparently slept most of the “visit”.

Emotions:

Extreme frustration.  The ONLY time I get out for anything at all is the weekly grocery run.  It seems that keeps getting cut shorter.  And they always have something else to do, so they don’t even really visit any more.  So, it’s more and more time just me and DH  … and he’s mostly sleeping.  Not that it matters, he’s rarely in the same time zone I’m in … not like I can carry on a conversation.

The sun is shining, the house is clean, critters are fed, DH is sleeping soundly (CAN has already come and gone), and I slept fairly well.  I have no reason at all to be *down* … but I do feel alone.  It is too frustrating for words how many things I come across that I could use some help with .. and I’m getting less and less.  DSS and TGF are the only ones who lives even remotely close enough .. and they just keep getting busier and have less time for us.  It’s like they can barely squeeze in a “duty visit” and then rush off to their busy lives, and we’re just thrown away.

I had thought I’d get back to doing some sewing; but my machine is unthreaded.  Something else TGF didn’t have time to be bothered with.

I guess today I’ll just watch the same old line up of TV shows.