Sunday, January 19, 2014

Day 239

Day 239
Saturday, January 18 2014
Physical:
This was actually a fairly good day.  It started out messy (you don’t want to know!!!), once DH was up and dressed he was reasonably calm.  There were no incidents of trying to get out of the chair.  He didn’t eat “breat”, but he did at least eat a ham sandwich and then several pieces of chicken for supper.  I know – he’s not getting any veggies or fruit.  I keep trhying, but can’t force it down him. L  I’m looking for way around the issue (i.e., giving him juice instead of water with his pills, with the “excuse” that the pills won’t taste so bad).
Even though he slept most of the day, as usual, he had a good night with not much coughing.
People:
Our DDIL and DGD15 came around mid afternoon and stayed  3 or 4 hours.  DDIL helped me with a lot of the irritating little issues, like mail, that give me a hard time.  That also frees up time on Sunday.  I totally enjoyed their visit! I think DH enjoyed having DGD there – when he was awake at least.  She actually enjoyed watching something on TV with him, which was great.
Emotions:
When I am less tired, I am less stressed.  That’s just common sense.  But most days, even if I start out feeling rested, by the end of the day I’m totally exhausted .. and therefore a bit weepy.
The best days are the ones with contact with people outside of this house.  I don’t expect company every day.  I don’t even want it .. I do occasionally need my “down” time.  And I’m really not doing a good job of keeping the house “company ready”, so I need time to work on that.  But yet .. any day that I have company, or a phone call, or an email, is a bit brighter.  I believe DH has slightly better days when he has company (even though he tends to sleep through most visits).  And by company, I do not mean “duty visits”.  That’s what the visits from the social worker and the chaplain start to feel like, especially when they come tandem.  But, they’re doing their jobs.

I have slight hopes now of a light at the end of a long dark tunnel.  There are many road blocks still – a lot of coordinating needed, and some aspects may not work out at all.  But at least there’s that glimmer of hope.  And there is the comfort of knowing someone is willing to step up and offer to help out in a situation that was looking awfully bleak.  We’ll see what happens, and I’ll try not to get excited, at least not until a lot more pieces fall into place.

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