Day 229

Day 229

(Monday, Tuesday and) Wednesday January 8 2014 

Physical:

Monday was a quiet day with no unusual or notable incidents.  DH stayed in bed until around noon when the CAN got here.  On Tuesday he insisted on getting up early, at 9:00.  I was gone most of the day, but everything was “normal” when I got home.  He didn’t eat anything until I got here.

Today  He stayed in bed until after 200; and after his bath, he was up again.  He did sleep a lot of the afternoon, so I don’t know how tonight will be.

He does not seem to be overly disoriented; some, as always, but nothing drastic.

People:

Monday and today was just the CAN.  On Tuesday I was gone most of the day to an appointment, and DSS was here.  He later told me the CAN was here here “about 10 minutes”, and that she sat down and “played on her phone” (she logs the home visit!) then left.  Also, some concentrator supplies were delivered; but the driver was afraid of a stray dog in the yard and wouldn’t get out of his truck.  The nurse has not come yet, but I believe she had some emergencies come up today.

Emotions:

I just stay so tired .. but a lot of it may be due to the cold weather, which makes the heat be on more.  I seem to react to the gas heat, but we really have no choice.

I also got news from the doctor that is sort of encouraging; but has very discouraging components.  Turns out at least some of my vision loss is due to “inflammation” in both eyes.  That explains why they itch and burn and run and just generally ache a lot.  When asked what causes it, the doctor said “arthritis”.  Hmmm.  I’ve never been officially diagnosed (I don’t go to doctors other than for my eyes) .. 5 or 6 years ago when I fell and hurt my knee, I did go to the ER, and had an Xray done.  I was sent to an ortho, who told me at the time I did have it in that one knee.  Stands to reason it’s probably in both I guess.  With all the lifting and kneeling I have to do to set up the dialysis, plus lifting DH up and down, it’s hard to see where there’s much chance of it getting any better.  I was ordered some prednisone drops (which I can’t get until Sunday).  I go back in a month (providing DS can make arrangements to take me again) to see if the inflammation has abated and if my vision has improved.  He also described to me the criteria for “legally blind” .. I am borderline, and he will discuss it further after we see if the drops helped the inflammation and the vision any.

Today I feel discouraged, depressed, and achy all over.  I seriously doubt I was exposed to outside enough to catch a cold; but I did get awfully tired yesterday.  I can’t seem to get caught up today.

I hope DH and I both have a good night and I get a bit more rested.  Lately I’ve been waking up around 3:00 or so .. even if DH doesn’t … so I just hope not tnoght!