Day 215

Day 225

Saturday January 4 2014 

Saturday continued about as oddly as it started.  Once up and in his chair, DH went to sleep of course.   After the struggle to get him to take his pills, he refused to eat anything, even though there were several options.

Around mid afternoon, while I was semi-watching (listening) to TV in another room (because he was napping with the TV turned to something or other I wasn’t even remotely interested in .. and yes I feel guilty, even though I know I cannot possibly watch him 24/7), I heard him call me.  When I went to him, he was on the floor.  He had taken a notion to “get up and go” .. not sure where … and dumped himself right out of the chair.   

I called DSS, he came over and we got him back in the chair.  While waiting for DSS to get here, DH took his socks off – he said they were “slippery” (they have a non-skid bottom) and that caused him to fall instead of standing up.  Then he laid down to nap while waiting.

DH was given the option of going to his room to lay down – he said that was a “black hole” he didn’t want to go to. 

Before he left, DSS made a point of telling me how he’d tucked the chair control in back.  Apparently he took it for granted I’m too stupid to have tried that.  He, of course, is not here when DH demands that I give him the control. He often wants to move the chair up or down when trying to get more comfortable.  Of course, he also often confuses controls (TV remote, chair control, amplifier). DSS also made a point of telling me how to not “argue” with DH, but go along with whatever he says so he doesn’t get upset or agitated.  Really??  Really????  He’s going to tell me how to deal with his dad when he only spends one afternoon a week with him???? 

After DSS left, DH settled in for the rest of the afternoon and evening.  He ate 2 ham sandwiches, and I waited until about 8:30 to take him back.  By the time I had gotten him cleaned up (I don’t know for sure, but think he gave up that *fight* while laying on the floor) and dialysis connected and all, it was about 9:00.  He did wake up, briefly, around 4:00; but he was easily calmed down and went back to sleep.  He woke again around 7:30 … talking to  someone only he could see.  He seemed to think he was in a war zone (note to slef: stop letting him watch evening news??), wanted me to make sure t*they* didn’t do anything to him.  Also wanted me to send someone to get rid of the rats.  But he did go back to sleep – only roused briefly for pills … and though wheezing a lot, is sleeping this morning.

Unfortunately, I woke up around 3:00.  That just makes me so furious .. absolutely nothing woke me.  But I couldn’t get back to sleep.  I started a load of laundry, washed up all the dishes, loaded a flat of bottled waters into the fridge, then watched an old movie.  And I still had a hard time getting back to sleep.  After I got him settled around 7:30 (dialysis was still going), I tried to get a little more sleep; but it was not use by then.  My mind won’t quit buzzing, worrying about how to get things done today.  Sunday: the one day a week I’m allowed out of the house, to get med refills and groceries.  DSS and TGF tend to get here around 2:00 or 3:00, so over half the day is gone to start with.  In theory, I buy groceries and when we come back here she cooks dinner for us all.  It quite often seems to work out that by the time we get to the store and back, it’s late .. and I end up buying take out, so I’m feeding us all but she doesn’t have to cook.  She also more often than not shows up here with 2 or 3 hungry kids  … somehow expecting me to feed them lunch as well.

I need her to help me go through mail, and to help me check pills.  But she doesn’t have time for that every Sunday.  (My brother thinks I should have mail sent to DS/DIL to handle for me .. they’re willing … but how do I get to the PO to do a change of address when I can’t get out of the house on a weekday?????).

Today TGF wants us to go to next town over to see her sister’s new babies.  I don’t object to going to see the babies .. but I know for a fact she’s already been to see them; and this puts a serious dent in “my” available time.

Next Tuesday I get a “sort of” day off .. I have an eye appointment.  DSS will come stay with DH while DS takes me.  Note: DSS will not have to do a single thing but wallow on the couch and keep his dad company.  At most, he might take him back to lay down (and without putting the safety rial on the bed).  But since it’s only for the afternoon, DH will most likely prefer to stay up with DSS.

I guess I should worry about getting through today first.   It’s about 10:00 and he’s still sleeping, so I better go see what else I can get done while I have the chance.