Day 237

Day 237

Thursdayday January 16 2014

Physical:

Everything seems much the same as always.  At one point in the afternoon DH nearly dumped himself out of the chair again (it’s not possible to put the control out of his reach, because it’s attached from the inside.  Sometimes he can’t figure it out, but sometimes he can).  At least he did not get argumentative, but put the chair on back.  He refused to eat any lunch, and barely ate 2 ½ pieces of chicken in the evening.

People:

Thedialysis nurse came to draw labs.  The CAN came at the same time (early for her).  So the rest of the day was long and quiet.

Emotions:

A lot of frustration at this point.  I’ve let myself get too hopeful about getting a weekend off; but there just seem to be way too many issues to overcome for it to happen.

I did have a couple of “good” nights .. only woke briefly and was able to get back to sleep.  Not last night.  He woke up coughing and creaking and rattling the bed.  I finally had to get up to see what was going on.  He was trying to reach the trash can to spit into (yuck).  I asked what happened to the small basin I had left on the bed where he could reach easily … he said he “threw it in the back seat”. 

That was around 2:30.  Since then I’ve washed dried, and (mostly) put up a load of laundry; washed dishes; and mopped the kitchen floor.  I did manage to get an hour nap after all that, but was up again by 7:00.  I think it might be a long day!

Every day I think I’m going to go upstairs and get a start on some of that mess.  And by afternoon my legs feel like lead, and I can’t hold my eyes open.  Yesterday I couldn’t get warm.. no idea why.  I hope today is better and I dredge up some energy to go up stairs a bit.  After a bad night, DH is sleeping soundly now; but who knows how the day will turn out.