Monday, January 13, 2014

Day 233

Day 233
(Friday, Saturday,) Sunday January 12 2014
Physical:
There’s been nothing particularly significant in the last 3 days.  DH’s appetite is still on the low side .. even things he normally likes haven’t empted him to eat much (which, to me, indicates he really isn’t hungry rather than just being stubborn if he doesn’t like something).  His sleep patterns also remain eratic; but on average, he sleeps 15 to 20 hours a day.
Mentally, he’s about the same.  He appears to be totally incapable of realizing that he can’t stand or walk.  Even when I transfer him, and point out that his legs don’t cooperate even for a step or two, he is puzzled because his mind still tells him he’s perfectly capable of walking.
People:
The same substitute CAN came Friday.  Saturday, as usual, we saw no one.  Well, accept when the little girl next door ran over .. her father wanted to be sure we knew there was a tornado warning, and to “borrow” some candles.  (the power had flickered once.  If they happen to bring the candles back, I will tell them to keep them for emergencies – I’ve replaced them). 
Sunday, of course, was the usual.  DSS was here with DH (which basically means he wallowed on the sofa while the watched TV together).  The boys stayed here while TGF and I did errands.  We actually got an early start, and were home while there was still daylight – which rarely happens! 
Emotions:
Saturday night, for whatever reason (at least partly because I napped too much in the day .. stormy day, not much else to do!) .. but I woke up by around 1:00 AM, and never got back to sleep.  I got several of my chores done, but no sleep.  So Sunday was a hard day – I was so tired.  The last few days my joints have been hurting (I’m sure the sharp changes in weather), so by Sunday night I was really miserable.  And of course DH decided to stay up later; and then *had* to sit on the commode again. 
At this point, it’s really hard to trust emotions.  I woke up too early; but at least did get a bit over 5 hours sleep.  I’m still a little tired, and achy.  And DH keeps waking – guess this is going to be one of those difficult days where he is “in a warehouse”; it’s full of toxic something; and he wants to “go home”. I can’t take a shower until the dialysis is finished (drains in the tub); and he’s wanting to get up. 

And listening to the monitor I can already tell, it’s one of those mornings he’s going to try to get up anyway. L

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