Day 214

Day 224+

Friday January 3 2014  (+ into Saturday)

Physical:

Friday was a fairly quiet uneventful day.  DH slept until close to noon; and after his bath, sitting in his chair, slept a lot of the afternoon.

He didn’t eat as well .. 2 chicken “bites” for lunch, and sliced ham and scalloped potatoes for supper.  They are all things he does like, but he still didn’t want much.

It’s now into Saturday afternoon, but I’m writing now because this morning has been a bit *odd*.  He was, as always, disoriented.  But when he tried to talk to me as I was getting him up and dressed, he was having trouble finding words.  He wasn’t babbling nonsense, but he couldn’t make what he was trying to say come out in the right words.  He got a little frustrated; but then the thoughts seemed to just fade away – he was not as agitated as he has been in the past.  Taking his pills this morning, he seemed a bit vague, like he wasn’t sure how to take them.  I ended up handing them to him – something I’ve rarely had to do with the regular morning pills.  He is now, of course sleeping.

People:

The CAN came around noon, and that’s all.  We hardly ever see anyone on Saturdays, so it’s a quiet day now.  (and too cold to feel like doing anything anyway).

Emotions:

I’m concerned about the change in his behavior this morning.  I’m also a bit frustrated about getting “second hand information”.  The CNA turned the nurse questioned her about DH not having the head of his bed raised.  The CAN told her it was because he didn’t like it up .. which I would have also said.  So why didn’t she ask me?  It sort of makes me feel like they’re finding fault behind my back.  I’m already feeling frustrated and inadequate.  I don’t need added stress.  Also, the CAN turned the APM back on – she said it was important to kee it on to prevent bed sores.  Bed sores???  Although he does spend a lot of time in bed, he is by no means completely bed bound at this point.  And he does change position when he’s in bed.  If there had been even a hint of bed sores (even so much as a “red spot), she would have told me.  The APM is noisy, puts out heat, and in not generally very comfortable (although truthfully, it’s not nearly as bad as what they use in the hospital).  So I find it very annoying that they do things without discussing with me why it’s being done differently.

Last night (Friday night) he woke up around 3:00 (as he often does).  He woke me up talking; I waited awhile, but he kept fidgeting and breathing hard, so I finally got up to check.  He thought he was looking for model parts. I persuaded him to wait until morning, and he did go back to sleep.  I, on the other hand, took hours to get back to sleep.  Now today I feel very tired and groggy, in addition to being chilly. I think any emotions I feel today are suspect.

I do hope when he wakes up he’s more oriented.  The language things always worries me .. is there a reason for the  (apparently) sudden change?  Is this a natural progression?  If so, why does it seem “sudden”?

Why are there so many more questions than answers????