Day 274
Friday, February 21, 2014
Physical:
This was a little bit better day. DH stayed in bed until close to noon. He was awakewhen he got washed up, but was
persuaded to stay put since the dialysis nurse was coming later. After that, he went back to sleep.
Once up, he dozed a lot in his chair. At one point he wanted me to help him get up
.. said he wanted to lay down on the sofa!
I convinced him to settle for laying the chair back. He wasn’t happy, but didn’t argue; but then
he did say he “didn’t hurt”. Since he’d
never said anything about hurting to start with, I’m not sure what he meant
(and he couldn’t tell me). I tried to
give him some lunch, but he refused to eat; but then I fixed supper a little
earlier, and he ate a (small) 2nd helping of spaghetti.
By 8:00 he was ready for bed as normal, and went on to
sleep. He slept all night, but at times
his breathing sounded labored .. he sounds very congested. Early in the morning I went in and put on an
extra blanket, and he seemed to *settle* a bit so maybe he was on the edge of
too cool. He’s usually OK in the day,
but at night wants a lot of covers.
It’s still too early for him to be up (though on a week day
the CAN would be here now); but he got a coughing spell that seems to have
gotten him awake. I’m hoping he’ll go on
back to sleep .. there’s just no point in getting him up too early and then he
just sleeps in his chair. If he sleeps
in bed longer, he tends to be awake more of the afternoon.
People:
The CAN came early per the new schedule that I’m very unhappy
with. But since DH didn’t insist on
getting right up, it was OK. The
dialysis nurse came around mid morning to draw blood for next week’s
appointment.
Late last night DSS called to see how things are going and
ask about my weekend.
Emotions:
I didn’t sleep well, and have absolutely no idea why. I tried to just stay in my chair anyway; but
I couldn’t “turn my mind off”, and started getting very weepy I got on up, and found a few things to do. Now I’m headachy – probably from not enough
sleep; but I also feel like my eyes are getting inflamed again.
I don’t much like Saturdays any more. The majority of the time anyone that comes
here does it on week days. The hospice
people don’t work weekends (well, some do, but not “our team”). Even TV is boring.
I think I will try to see if I can doze for an hour, then
take DH pills, then get a shower. Since
changing his room around is going to be a project (which I’ve been offered help
with, and I am ecstatically grateful for that!), while he’s up during the afternoon
I will try to start sorting some of the random *stuff* that needs to be
eliminated. I mentioned the idea to him
last night .. when, once again, getting him into the wheelchair was difficult
.. and he seemed OK with it. At the time
he was understanding my point about not having to use the wheelchair so often. I know he’ll forget and I’ll have to explain
more than once. My only fear is that he’ll
feel “banished” to the one room. I’ll
just have to try to get him to understand (as much as he’s able) that this plan
is a good alternative to him having to be completely bed-bound. I will have to relocate the monitors so I can
hear him if he needs something, and not just hear the TV. There’s a lot of furniture moving involved,
but I do think this will be a better plan.
At least, I hope so. The whole
point is to only have to move him from bed to lift chair, and skip the
wheelchair step that is getting increasingly dangerous. But it would be totally mean to just put the
lift chair in his room and leave it like it is, so he really would be
abandoned Some of the people that at one
time came to see him have pretty much stopped coming by. It almost feels like they all thought he was
worse off than apparently he is; and since he’s not on his death-bed, they don’t
bother to come visit so much now. But
Sundays can be the same, just in a different room (DSS can just lay on the sofa
and choose what they watch, and DH will be fine with that).
Anyway. A lot of stuff
needs to come out of that room, so perhaps today I can start on it.
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