Day 272

Day 272

Wednesday, February 19, 2014

Physical:

This was not an easy day.  It seems the change in schedule has DH off kilter too. He did not get up right after having his bath; but he was ready to get up much earlier than usual.  Then he immediately went to sleep in his chair.  He woke up around noonish, but refused his protein drink then.  He insisted he had to go to the bathroom.  We had another go round of “geriatric 50 first dates”, with me explaining that the message to “stand up and walk” just doesn’t reach his legs.  This time he refused to believe me; and we ended up with a near disaster before he finally allowed me to get him into the wheelchair.  Then he decided to just lay on the bed until “something happens”.   He’s having a very hard time telling if he really needs to “go” or not.  He ended up napping for over 3 hours.

I got him up by 5:30 – which, of course, threw my evening schedule out of balance too.  But he drank his drink, took his pills, and also ate 2 pot pies for supper.  And by 8:00 he was ready to go back to bed.

Unfortunately, this morning he’s awake too early (waiting for his bath), wanting to “get off this table”.

People:

With the CAN coming so very early, it makes for a very long day. In the evening I did get to talk to my brother, which was nice.

Emotions:

I’m trying to push myself to adjust to a new routine, but I’m really not good at it.  It takes me awhile to get settled, and I don’t do well with disruptions.  But, that’s my own problem and I have to find a way to solve it.

DH has been “odd” the last few days, and I suspect he’s also having to adjust.  I don’t know how much he’s aware of things changing; but he does know the CAN comes much earlier now.  It seems like instead of relaxing him so he’ll go back to sleep (as should be his normal), apparently the bath wakes him up.  I really cannot handle getting him up and down multiple times a day, but he just can’t grasp that.  Well, he can’t even grasp that he can’t do it himself. 

I’m starting out the day with my back achy.  I think perhaps the changes I have in mind for his room may be tackled over spring break, rather than wait for summer.  It’s not something I can do by myself.  I really need DSS to take a few things to his house; but he is resisting making changes.  I know it’s partly because he sees it as too permanent (as if he’s waiting for his dad to get better).   Or maybe he just sees it as me getting rid of things while his dad is still here.  What I need to do is make more space in his room to accommodate all the various medical equipment, and still have it comfortable for him to be in there and have visitors in the room with him.

This morning (Thursday), CAN here by 7:30, and DH told her he wanted to get up as soon as possible.  I am so frustrated; I can NOT get him up and down multiple times.  But he is in one of those *moods* (not really a mood but don’t know what else to call it) that he wants to go home.  I have no idea where he thinks he is, but he is very determined to leave.  Obviously that’s not going to happen.  I do hope this doesn’t turn into one of those days where he gets obstinate about it (like once before he refused to even get out of the wheelchair because he was waiting to be taken home).  I expect the nurse some time this morning .. I have no idea how she’ll react if he’s in that kind of mood.  I know she’ll tell me it’s “normal” or “to be expected”; but what am I supposed to do????

Getting up so early (by 6:00 this morning so I had time to shower) is not sitting well.  I used to have morning for getting stuff done, and computer time.  Now it’s all messed up, and I haven’t yet figured out how to adjust.