Day 272
Wednesday, February 19, 2014
Physical:
This was not an easy day.
It seems the change in schedule has DH off kilter too. He did not get up
right after having his bath; but he was ready to get up much earlier than
usual. Then he immediately went to sleep
in his chair. He woke up around noonish,
but refused his protein drink then. He
insisted he had to go to the bathroom.
We had another go round of “geriatric 50 first dates”, with me
explaining that the message to “stand up and walk” just doesn’t reach his
legs. This time he refused to believe
me; and we ended up with a near disaster before he finally allowed me to get
him into the wheelchair. Then he decided
to just lay on the bed until “something happens”. He’s having a very hard time telling if he
really needs to “go” or not. He ended up
napping for over 3 hours.
I got him up by 5:30 – which, of course, threw my evening
schedule out of balance too. But he
drank his drink, took his pills, and also ate 2 pot pies for supper. And by 8:00 he was ready to go back to bed.
Unfortunately, this morning he’s awake too early (waiting for
his bath), wanting to “get off this table”.
People:
With the CAN coming so very early, it makes for a very long
day. In the evening I did get to talk to my brother, which was nice.
Emotions:
I’m trying to push myself to adjust to a new routine, but I’m
really not good at it. It takes me
awhile to get settled, and I don’t do well with disruptions. But, that’s my own problem and I have to find
a way to solve it.
DH has been “odd” the last few days, and I suspect he’s also
having to adjust. I don’t know how much
he’s aware of things changing; but he does know the CAN comes much earlier
now. It seems like instead of relaxing
him so he’ll go back to sleep (as should be his normal), apparently the bath
wakes him up. I really cannot handle
getting him up and down multiple times a day, but he just can’t grasp
that. Well, he can’t even grasp that he
can’t do it himself.
I’m starting out the day with my back achy. I think perhaps the changes I have in mind
for his room may be tackled over spring break, rather than wait for
summer. It’s not something I can do by
myself. I really need DSS to take a few
things to his house; but he is resisting making changes. I know it’s partly because he sees it as too
permanent (as if he’s waiting for his dad to get better). Or maybe he just sees it as me getting rid
of things while his dad is still here.
What I need to do is make more space in his room to accommodate all the
various medical equipment, and still have it comfortable for him to be in there
and have visitors in the room with him.
This morning (Thursday), CAN here by 7:30, and DH told her he
wanted to get up as soon as possible. I
am so frustrated; I can NOT get him up and down multiple times. But he is in one of those *moods* (not really
a mood but don’t know what else to call it) that he wants to go home. I have no idea where he thinks he is, but he
is very determined to leave. Obviously
that’s not going to happen. I do hope
this doesn’t turn into one of those days where he gets obstinate about it (like
once before he refused to even get out of the wheelchair because he was waiting
to be taken home). I expect the nurse
some time this morning .. I have no idea how she’ll react if he’s in that kind
of mood. I know she’ll tell me it’s “normal”
or “to be expected”; but what am I supposed to do????
Getting up so early (by 6:00 this morning so I had time to
shower) is not sitting well. I used to
have morning for getting stuff done, and computer time. Now it’s all messed up, and I haven’t yet
figured out how to adjust.
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