Day 261

Day 261

Saturday February 8 2014

Physical:

Saturday was a very oddly quiet day.  DH stayed in bed all day.  Around mid afternoon he would have liked to get up; but he didn’t press the issue.  I told him that after the near disaster Friday night, he and I both needed a rest day.  I doubt he remembered or understood what I was saying, but he didn’t argue the point.

He kept saying he wasn’t hungry; but I did persuade him to eat a sandwich in the early afternoon, and then a pot pie.  Oh, and he did get a bowl of ice cream in late afternoon.

Surprisingly, he actually stayed awake most of the afternoon.  He had his TV on, and was changing the channel occasionally – and actually managed to find things to watch.

He slept well, but is wakeful early this morning (Sunday), and full of questions about where he is.  It’s weird how he understands that his mind is playing tricks on him; and yet at the same time, whatever he thinks he sees is completely real to him.

People:

The only people here was TGF and her youngest.  She brought groceries, and helped with the mail.  (she won’t be here today Sunday, so I won’t get out of the house this week).

Emotions:

Right now my biggest concern is the physically getting DH up and down.  Friday night was such a fiasco, now I’m terrified of trying.  He sort of understands; but it’s also something he really has no control over.  It’s like there’s actually some strength in his legs; but the brain refuses to send the message to them to stand up.  So he “sags”.   He seems to know it, but can’t control it.  But that doesn’t change the basic fact:  it’s up to me, by myself, 90% of the time, to get him out of bed and into the wheelchair; and out of the wheelchair and into the chair; and out of the lift chair and into the wheelchair; and out of the wheelchair and back on the bed.  That is a LOT of moving, even for him to only be up once a day.  And that is 4 different opportunities for a bad fall .. for him and for me.

I spent yesterday being strangely restless.  Part of it was just waiting for TGF to get here with the groceries .. expected her in the morning, but she didn’t come until mid afternoon.  But, she also picked up med refills.  Unfortunately, I didn’t discover until the evening that I had no milk.  She said she got it .. but it never made it to my fridge.  Hmmm … wonder where it is??  But she was going to go pick up a few more things (some chicken on sale, some nutrition drink), so she’ll get the milk.  DSS will bring the things to me this afternoon.

It’s 5 days to my “vacation”.  I planned it out so that the closer it gets, the busier I get.  Someone asked me Friday if I was packed yet.  Well of course not, that would be silly.  My clothes would be all wrinkled .. they’re chosen and hanging together to be packed later! LOL!

I keep losing my train of thought.  DH is not sleeping very well into the morning.  He sleeps, but keeps waking up and calling me .. first he was “in Wal-Mart”; then the “car won’t start”; and then to tell me about the giant spider, right there under the porch.   I am putting off getting him up until close to noon, so that he can (hopefully) stay up until bedtime without thinking he *has* to go lay down and take a nap.  He has been mostly pretty good about just leaning the chair back (though recently he’s insisted on having a cap over his eyes).  I can’t really make him understand that I have to limit the number of times I have to move him; but he seems to somewhat grasp the concept of not being too tired when DSS is here (later this afternoon).  I think this might be a Llllllllng day.