Day 153

Day 153
Thursday October 24, 2013
Physi could see no change on a day to day basis.  This week there clearly have been changes.  But as of this morning (Friday morning), he seems to be about where he was last Sunday.  But I'm still convinced *something* happened sometime Monday morning.
Thursday he stayed in bed all day until just lpast time to settle in ... then he suddenly decided he HAD to get up to plee  I gave in and got him up,  which was almost a mistake  I was able to get him up; but in the short span of time there, his mind slipped a cog again  He insists on sitting doubled over (which of course ends up meaning I have to clean him,, the "pot", AND the seat - sorry if that's TMI, but it's the way my life is)  I kept telling him to sit up and he started saying he couldn't, he was too tired  I had to force him uplright enough to get him back on the bed
He did go to sleep, but didn't really rest well and I was up and down several times during the night This morning, after spending most of the week (except going to clinic on Wednesday) in bed, he's suddenly ready to get up - way too early!
People:
The CNA came by much too early Thursday  I was barely out of the shower; and she forgot to call first  I guess she was hurrying through her day, since she's off today  
DSS came by in the evening.  He did the heparin for last night's dialysis  He also lit the pilot light in the heater  where I sleep, and took a few things home with him.
The phone rang a lot of times  The nurse called to check on the EPO shot scheduling - so now at least I know she'll be here next Wednesday  DSS's girlfriend called, but only to complain about DSS  They need to find some way to communicate, because my nerves can't take being in the middle
My girlfriend showed up Wednesday afternoon (after about 3 weeks of total silence)  She told me all about her new boyfriend, and her split lip, etc  She never one single time asked how DH is doing or how I am, or if I need anything  very depressing that she *claims* to be such a good friend, but doesn't really care about me at all.  Oh, almost forgot, the neighbor came over Thursday.  One of the girls was home from school.  She wanted to go back and see DH, but I wouldn't let her.  I don't really care if I have a bad attitude or what; I just don't want her bustling into my house and wanting to go into my husband's bedroom.  She thinks she knows all there is about "taking care of old people" and aparently thikns I'm too stupid.  Anyway, they sat and visited a short time, then prayed, and left.  One cute thing though - her 2 year old stood beside me and held my hand while she prayed!
Emotions:
I have way too many days where I just sit and cry all day.  I'm determined to keep up this blog as long as I can, but email is getting harder.  I had to give up on my newsletter.  Of course, I very rarely get email anyway.  Out of over 100 people who "subscribe", one lady in TX wrote  one line about hoping things get better.  (I know a lot of family who read it are away from internet, but that's only a small plercent of readers).  
Also the "P" button came off my keyboard, and it's making typing very hard.

I got interrupted, and it's more trouble than it's worth to try to read back and see where I was.  I'll end here for today.