Day 129

(Sunday and) Monday September 30, 2013
Physical:
Sunday he was up by around 8:30.  He stayed in the chair all day, with only a bit of restlessness.  Monday he was awake early, but I insisted he stay in bed a bit longer.  The PD nurse came by to draw labs (check hemoglobin).  After she left, I got him up.  In the early afternoon the CNA came to get him bathed, and he stayed in bed for a few hours after that.  He then got back up and spent a few hours up before going to bed.
He ate exceptionally well on Sunday (but woke once during the night saying he didn't feel good - I wonder if that's because of eating well but not having any Protonix for nearly a week?).  He didn't eat lunch Monday, but ate a good supper.
Monday evening he started tipping the lift chair forward.  He said he was trying to get comfortable.  Sadly, I do know what he means - the chair has a bit of a tendancy to tip you forward.  He said he was just going to get up and go over to the sofa and lay down.  Once of these days he'll try something like that when I don't catch him - and he'll be on the floor again.  I'm not sure if the confusion is less - or if we just avoid conversations that make it clear that his mind is somewhere else.  At least there haven't been any recent "extreme" mind trips.
People:
As mentioned, the PD nurse came by early.  The supply delivery was mid morning.  Then the CMA came.  After that the afternoon was quiet.
Emotions:
I find myself doing just what I fuss at him for doing - sleeping too much in the daytime, and not sleeping at night.  I have always had this problem - once I've gotten *some* sleep, it's extremely hard to get back to sleep.  Monday night, after getting him his last pills, I sat down to watch a program.  I never saw a bit of it - I woke up to find the program and the news over.  I turned it off, went back to sleep.  At some point the alarm went off (I think he rolled over on the tubing, but not sure).  I got back to sleep after that too.  But by 4:00, I was awake.  Instead of "tossing and turning", I just got up.  I did laundry, mopped the kitchen - several of the things I haven't been getting done lately.  Hopefully I'll have a bit of computer time and get a shower before he's ready to wake up..  I plan to try very hard today to work on things I need to get done, and try to limit the napping.  By early afternoon I get so tired I can't function; but if I can push past that, maybe I can get back to a more realistic sleep pattern.
I still alternate between trying to stay busy and weepy depression.  It's not helping that everything is getting harder and harder to do with my vision seeming to get worse nearly daily.