Day 127

Day 217

Friday December 27, 2013

Friday was a somewhat odd day.  DH slept until around 11:30 or so .. and only got up thenWhen I got him up because the chaplain was coming by. 

The chaplain and the social worker both came by .. and I later figured out they were going around more or less in tandom catching u with patients and also pairing with the nurse; the CAN later also told me she’d had to wait 45 minutes at one place while they talked to a patient.  That made it 3:00 before she got here.  Side note: somehow this visit didn’t feel as “special” as other ones have.  It was just a bit of a friendly chat.  No bothering to ask if we need anything.  And the S/W never said a word about any facility .. so I gather, once again, there is no help to be had for us.

DH actually dozed off and on while they were here. He continued to doze off and on (mostly “on”) until the CAN came.  After she got him washed up, he wanted to just stay in bed; and he never got up.  Around 5:30 I woke him to see if he wanted to get up a little.  At that time he decided the warehouse was too cold and he’d just stay put (he had 3 blankets at the time).  I fixed him some supper and took it to him, got dialysis set up, got him into dry clothes, and he settled in – and within minutes was asleep. 

He barely woke enough to take his last ills, and he did not wake  an hour or two later with a coughing spell.  He had a remarkably quiet night, up til around 3:00.  He woke up with coughing  (and, again, in a car); but I got him to settle fairly quickly.  He woke again around 5:30; he didn’t settle as quickly then, but he did go back to sleep.  But, by 8:30 he was demanding to get out of bed.  I really needed to get a few things done, but he was not going to quit trying to either climb over the bed rail or break the rail. 

Of course, once I got him up and into his chair, he went back to sleep.

There is no way to predict what his sleep/wake patterns will be from one hour to the next, much less day to day.  It’s frustrating – and exhausting – trying to keep up and also get the things done that I need to.

It seems this might be one of those “up and down” days.  But  since he got up so early, maybe he’ll be ready for a nap this afternoon when I get a chance to go shopping.

Geez, it just sounds like a 2 year old!!!