Day 99

(Friday and) Saturday August 31, 2013
Physical:
As far as I can tell, DH seems to be on a bit of a plateau lately.  His breathing at night is very rough, and I often have to get up to see if he still has his oxygen canula in place.  He has not had any "extreme" mind trips, but has on-going mild confusion. The biggest thing lately is the "wet pants" ... even though he is mostly incontinent, he at random times becomes aware that his pants are wet and wants them changed.  Several times during the night he has called me and asked me to change his diaper (and honestly, I don't know if he's being sarcastic or not!)
He has a sore knee and a skinned place (and now showing bruising) from his fall Thursday, but isn't showing any other signs from that.
He now has a comfortable recliner he can sit in (I tried it out, it does seem to be comfy).  It is much easier to get him up and down; but he still doesn't want to sit up any longer at a time. 
Several nights he's wanted to go to bed but watch TV; and then call me to turn off the TV (he still can't remember how to use the remote; plus he keeps dropping it).  One night he insisted I not raise the bed because it made it harder to watch TV - even though the TV was off.  
People:
The aide was here Friday, but came very early.  That put his up and down schedule off a bit - but since he hates being on any schedule, it didn't matter that much.
DS and DDIL came Saturday, but didn't stay long; they brought the chair, but had too many other things to do to be able to stay and visit. DSS called, as alwlays, to check on him.
Emotions:
Depressed that no one ever asks how I am.  The nurses and the aide understand and sympathise, and try to encourage me.  It would be nice if friends or family did.  But since they don't really understand, they can't sympathize.  So one day a week I get to tell someone my concerns, my fears, my sadness.  The rest of the time I just write it down here - because even though no one reads this blog, it helps to try to verbalize my feelings.  Some.