Physical:
Sometimes because of the mental issues I'm not really sure of the physical status. He went for about 3 hours without oxygen, and said he was fine. But I'm not sure he was as fine as he thought.
He had a clinic appointment in the morning. I got him up and dressed early. Good thing, since as soon as I pushed him into the living room, he said "now roll me into the bathroom".
I got him into the car without too much trouble. At the clinic, I got him out again with minimal problems. It was a long wait of course, since they've decided to do the iron infusions. Funny how that didn't come up until AFTER I mentioned getting his shots at home so fewere clinic visits. Anything to keep billing, right? (and it doesn't seem to concern them at all how difficult a process it is to get him there).
After clinic, I made a few stops and then we went next town over to pay rent. He rode at a peculiar angle because he can't get the hang of getting his but all the way into the car before sitting down. He barely gets on the edge of the seat, so ends up sort of sideways.
Once home, as so often happens, the problems began. He just couldn't get out of the car and into the wheelchair. Part of the problem is that even though we have that nice cemnt pad, his feet tend to slide. But also, he just won't even try to straighten up. I guess he's too tired by then; but if he doesn't get straight so he can turn a bit, he can't get into the wheelchair. He keeps trying to just move his but over sideways - and no matter how many times we go through this, he apparently isn't capable of *learning* that he can't do that. The frame of the car and the arm of the wheelchair are in the way.
He ended up barely clinging to the edge of the seat, and I dragged him into the house that way. Once inside, he slid the rest of the way off the wheelchair; I ended up pulling him by his wrists, while he pushed with his left foot, and got him back to the bedroom. By then he was just too exhausted (and so was I) to do anything else. I finally had to call DSS again, and he came over and helped get him in bed.
DSS commented on how heavy DH is - well duh! I knew that! DH claims that at clinic he weighed 241. If that's correct, he's actually gaining weight. How odd, since he barefly eats!
He remained confused all day. He never got out of bed, which I pretty much expected. He only ate a few bites of dinner (but he did eat cake).
When I got him ready for bed, had to clean him up. He wasn't even aware he needed cleaning. So now I wonder if (other than frequently thinking he needs to pee but doesn't) is he on the way to becoming completely incontinent? I have had to give in and start using the pull-ups at night; it may soon be day too. I put them on him yesterday since I knew we'd be out a long time. It's vaguely troublesome that he doesn't even mind.
When I woke him up a couple of hours later for his last pills, he was again disoriented. He also thought it was morning.
People:
Other than at clinic, the oonly people seen were DSS (briefly), and the neighbors. But oh my! I keep telling myself they mean well, but it's starting to get a little disturbing.
The mom and oldest came while I was still trying to get DH back to his room, and I had to ask them to come back later. They did, and went right into the kitchen to cook. Since I'm not a good cook, that was OK. The little girls (and the baby) were in and out.
Emotion:
This is all tangled up. I was totally frustrated and sad because I couldn't get DH off the floor. It frustrates me no end that he isn't able to listen to instructions any more. I hated so much to have to call DSS to leave work again (though at least it was toward the end of the day; and he *said* he'd been at a good stopping point).
But these neighbor ladies .. I don't know what to think. Like I said, the cooking is OK. They enjoy it, and I don't. It's a shame DH won't eat, but I will. But, they are getting awfully *comfortable* in MY house. When the food was ready, they fixed me a plate and put on a tray. In the living room. By myself. They took a tray back to DH, and I went in to get his over bed tray fixed. I raised the head of the bed. But "mom" just went right in and started tugging on his arms to straighten hm, andstuffing pillows behind him so he was propped where she thought he should be. And she was adjusting the tray, and just in general fussing around. And then .. she dragged a chair in there and sat in the room with him, chattering away in Spanish that he didn't understand a word of, watching him eat. I don't know, but it seems to me that's a bit nervy, and he thought it was weird.
The oldest daughter baked a cake too, which he did eat. And they washed up nearly all the dishes. And they left a ton of leftovers in the fridge.
But then I was asked if I'm busy tomorrow. She wanted to come over and help me clean the kitchen. WHAT??? Are you telling me my kitchen isn't clean enough for your standards??? Offering to "help" in general is one thing. To expect to decide what I'm to do on a given day, and imply my kitchen isn't clean enough, really bothers me. I know I can't see well, but I still don't think it's so bad that she needs to come "help" me clean it! I do know I need to finish washing out inside the refrigerators.
I'm just very upset over that. Fortunately, I was able to legitamately tell her I have company coming, and to ait until next week. I guess over the weekend I'll be cleaning!
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