This was not a gooI day. I don't know what's wrong; every now and again DH has a day where he just wants to stay in bed all day, won't eat, says he doesn't feel good. Nothing specific, no pain, no temperature. He just doesn't feel good.
I'm inclined to attribute it today to such a busy week. He's had to get up early (for him) every day. Normal for him is, most days, to lay in bed until noon or later. Sometimes he says he didn't sleep well; sometimes he just doesn't want to bother to get up. He's been being told for months and months now that it is bad for him to lay down so much. It promotes pneumonia among other things. It weakens him. And yet, when he doesn't want to get up .. unless I "force" him to for some reason (an appointment) ... he just doesn't.
Today was the 22nd day of rain. I didn't count, someone else told me - but I believe it. Maybe more. We've had an enormous amount of rain so far this summer. Apparently due to too much water,as of today, the toilets don't want to flush. That is, obviously, majorly invonvenient. I can Pplunge" them; but can't get them to flush and run freely. And of course (sorry if this is TMI - but then, not enough people are reading this for it to be an issue), he's had to use the commode twice. Normally I have to empty and clean it once a day (and if I don't, he needs a laxative). Yesterday ... no, Thursday ... he had a bad episode of diarhea. That was the first time in a very long time, and I suspect it had to do with his change of diet on Wednesday So anyway, I guess he's getting sort of back to "normal" for him. But doesn't it just figure, twice on a day when the plumbing has gone haywire???
Even though he is now on hospice, it's all very new and I'm not really sure what/when I'm supposed to do. I mentioned that, and he quickly and emphatically said he didn't need a nurse. That is just stubborness, and I don't know how to deal with it. If I had really thought he was sick, I guess I would have called someone anyway. But I just don't know. Is the a sign he's getting sick? Or just getting weaker?
He also mentioned the bandage on his catheter site hurt. I put it on exactly the same as always. And I'm not sure if he really meant the bandage hurt or the site. So there again, I am concerned. Is he developing an infection? And since that has to do with the dialysis, does the nurse even look at it? Or do I call the clinic. No, wait, they're closed on Sunday. And this would not be considered an emergency.
The nurse said she'd be coming once a week. I don't even know when. Will she come on Wednesdays since that was the day she started? Well, I do know the aide will come Monday. Perhaps she'll at least have an idea if I should call the nurse. But then, I most seriously hope he's gotten over this *spell* anyway.
I said he stayed in bed all day; but I guess I need to amend that. He did get up this morning. In fact, he got up earlier than usual - and I don't know why, because there was no special reason. He got into the living room ... but then, just sat there. He never turned on the TV. I did persuade him to put the foot rest up on his chair. I fixed him a bowl of soup, he only ate about half. He was up a bit less than 3 hours before he went to lay back down, but never got back up except to use the commode before getting in bed. I had to help him get undressed. He said something about being weak, and I pointed out that not eating will do that. Nevertheless, he went to bed, and got dialysis connected, about an hour earlier than usual.
And the questions inside my head continue. Is he really "fading" that much, or just having a bad day? Am I over reacting to his being over tired, or am I really in denial? I really don't know if his doctors have been "straight" with us ... either under- or over-stating his condition.
All these questions are giving me a headach. :(
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