So it looks like hospice really is happening. The nurse came out this afternoon for her initial assesment. I was telling her some of the other things we've been tld, and she was a bit shocked. For example - the dialysis does NOT have anything to do with his lungs! The dialysis keeps him alive because it does the work of his kidneys; it has no effect whatsoever on his failing lungs!
She (Marnie) explained how things work from her end, and helped us make some choices about care options. For example, someone will come out 2 or 3 times a week to help him bathe, and even wash his hair!
Earlier this morning I got a call that a hospital bed had already been ordered. While here, the nurse called a doctor on call, and got an order for oxygen. Finally!! He will get some oxygen, which will make him feel better!!
I'm really very encouraged. It just feels like finally, someone is going to offer services that will help him, and me too.
Next will be a visit from Marnie with the social worker. Not sure what to expect; but that will probably be Friday.
Deep breath.
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