Day 181Day 181

Day 181
Friday November 23, 2013
Physical
DH had a fairly good day I think.  He was a bit muddled early this morning, but seemed to (mostly) come out of it.by later in the morning.  He ended up sitting in his chair a very long time.  That was not completely his choice, but the way it worked out.  He napped there though, and was OK.  By evening he was getting confused again, but that's the "new normal".  He ate fairly well too.
People
An odd day of people in and out, but not what was expected.  The dialysis nurse came by 930ish to draw blood for labs for next week's appointment.  The CNA got here very shortly after the nurse left, very early for her.  But the long afternoon was a string of disappointments, as at least 3 people either expected or "promised" (even though I know not to believe) never showed up, called, or anything.  It really makes me feel abandoned.  In the evening, however, DSS and crew came, and I got out of the house for an hour to go to the Lights!  That was very nice.
Emotions
As I said, a lot of disappointments.  My friend said she'd come .. and it was a very nice day .. but of course she didn't.  Now there will be no more nice days for who knows how long, and I still don't think any yard decorating will get done.  And of course I have people telling me I shouldn't worry about it, they're not important, blah blah blah.  Well I *know* they're not important.  But why is it that things that matter to me are always just brushed off as "unimportant"?   And what right do people (especially ones who can't be bothered to help me out in any way, either personal or with DH's care, ) have the right to tell me what is or isn't important?  DH's sister, who had said she'd come by during the week to help sort books, never came by or called.  And the social worker, who said she'd come "every 2 or 3 weeks" now hasn't been by in 4 weeks.  I really enjoyed talking with her; apparently that was not mutual!  
On top of that, I decided to set up dialysis early (because I needed to *do* something!), and ran into a problem.  Part way through set up, I got an alarm and a "red screen".  I've been told that means to STOP;  but I don't know why.  I finally took a picture of the screen, downloaded it, and enlarged .. and all it said was "system error".  DSS had been by earlier (all he was doing was dumping trash on the burn pile, but says he will burn it on Sunday), said he'd come back.  I waited awhile, then decided I was on my own and had to try something.  So I got out a new cassette and started over .. and it worked fine.  Seems like there have been a lot of defective cassettes lately .. there are only a few left in that box, but I'm going to open a new box tonight!
Today will be a bit busy.  I've already cleaned up most of the kitchen (when they came last night, they brought supper to warm up and eat here) and will do the floor soon.  The rest of the house is at least clean.  In a few hours I plan to try to watch a Christmas parade.  It will be on TV, but the camera spends too much time on the hosts and not on the parade; so I'm going to try to watch it streaming live and see if that's any better.
Tonight a friend and some of her family are coming to supper .. a tradition of many years for the Saturday before Thanksgiving.  They are going to see the lights, but I will be staying here with DH.  Whether he realizes it or not, it's our 34th anniversary.  He'll know if I tell him, he just won't remember.  But I will be here anyway.