I never heard back from hospice on Friday; and didn't really expect to over the weekend. So, still in limbo, waiting.
Yesterday was my once-a-year treat from TGF. She took me and her mom out to a play. We went to see "Sister Act". DSS and the boys stayed here with DH. I had set up the dialysis before leaving; the only thing DSS had to do was give him his evening pills.
Well, turns out DH got to feeling bad. I don't know what (if anything?) happened. He just said he felt bad. He went back to the bedroom (to use the commode first); when DSS went back to check, he (DH) was laying down. He didn't want to eat anything.
When we got home, around 12:30, I tried to get DH to sit up enough to undess and get "in" bed (he was laying on top of the covers). He managed to kick his shoes off, but never moved. I finally hooked up the dialysis, put a blanket over him, and went to bed.
The alarm went off around 2:45 (don't know why); and again about 5:00 (still don't know why). At 7:00 he called me; when I went to see what he wanted, he asked me where he was. This is NOT a good sign. But I talked to hiim a few minutes, then he went back to sleep. I was awake by then, and did a few things I needed to do.
At 10:00 I took him pills; he did manage to sit up, but after getting down about half the pills, he got nauseated and gagged. Fortunately, he can't throw up, but he heaved and gagged a lot. I put an anti-nausea pill with the rest of them, which he did manage to get down with a can of protein drink about a half an hour later.
Then he decided to get up to sit on the commode (and this is when he finally took his jeans off). But, he refused to let me come help him stand back up, and ended up on the floor again. Fortunately this time he was mostly on his knees, so we did get him back on the bed. Once I got him sort of straight, I got him actually under the covers and left him alone for a few hours. During the afternoon I took him a pot pie, which he did eat (though he "toppled over" a couple of times and I had to help him get upright again). Then he laid back down. It's now 7:00, and he's still down; says his stomach hurts. It's the first he's been specific about something hurting. Now I'm wondering if he's gotten another infection already. That terrifies me - although, not as much as wondering if he'd had another heart attack!
At this point, my plan is to (1) call hospice if I don't hear something by noon, to find out what's the status; and (2) call or email Doreen (dialysis nurse) first thing in the morning to see if she can come out and give him a dose of antibiotic (just in case!). I'm also going to use collection bags instead of just draining outside.
This has not been a great day, and I admit - I'm tired and discouraged. And a touch guilty because *something* happened the one night I went out. :(
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