Brent and Cindy and the kids got here about 4:00. I had gotten all of the cleaning done I wanted to, but hadn't finished the potato salad. Brent helped me peel the potatoes, and then I finished that. He took me to the grocery store; we mostly got a variety of stuff to have sandwiches and salads for supper. Going out this week might be a problem, but I'll figure out what I can do when the time comes.
Jimmy continues to insist on getting up and down at odd times. He laid down around 1:30, and got up when the kids got here at 4:00. But while Brent and I were at the store ... not sure, but I think around 6:30-7?00-ish ... he wanted to go lay down again. He had to wait until we got back (Cindy is too small to help him stand up!). I fixed a plate of supper for him, but he didn't eat much (as usual lately).
I was late getting to setting up dialysis; but I still had to change up my "routine" because he was still in the bed. But then after I was done, and we all went back to the den to try to watch a movie, he got up and got all the way back to the den. Which only goes to proove he CAN do things when *he* wants to do them.
It was late before we finally started the movie (Life of Pi), so close to midnight before he got to bed. Very unusual day.
During the day, I explained to Brent and Cindy about the hospice situation. Later, as an offshoot of that conversation, we talked about making "final arrangements". Well the fact is, that needs to be done regardless of hospice or anything else. One, it should be done ahead so that when it's needed it won't be an additional stress when I need it least; Two, I won't be pushed into someone else's ideas; Three, it shoudl be done while there's still a little (VERY little) left of his $$ to pay for it. I will have to try to talk to him about this; but I'm not sure it will do any good. He's always pretty much refused to discuss anything like that ... he seems to think it's up to survivors to make all arrangements and he shouldn't have to think about it. Plus, if I try now, I'm afraid he'll think I'm planning to "pull the plug".
I'm also concerned that if we talk about it, he'll tell his sister. It's not so much that I'm trying to keep it a secret from her ... I just don't want her to know until everything is arranged and paid for. Otherwise I am very much afraid she'll try to bully me into doing what *she* thinks is appropriate (with no regard to his wishes). If everything is all done, I can tell her she's welcome to hold a "memorial service" and do it any way she wants.
Well, those are my thoughts from yesterday; it's time now to get on with today.
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