I started this thinking I'd be tracking our "journey" with hospice. Only, that's not going to happen. Then they came back with Paliative Care. Well, we're not writing it off yet .. but the lady (nurse Lucy) who came said it would most likely be cancelled after a few home visits .. because realistically, there's nothing they can do. He's not in pain. They can't do oxygen. We don't need help with medicine refills. She actually said he'd benefit more from hospice .. but that option has been taken away.
I'll keep on writing occasionally, just because it's an outlet; and I can look back and see progress (or lack thereof). But really, it's all pointless. We've pretty much been tossed out with the garbage. His doctors seem to want to write him off. Hospice will only "help" (how is that help???) if he stops dialysis.
I keep getting suggestions that we hire someone to come sit with him so I can get out. Really??? We have adult sons and grandchildren. And we should *pay* a stranger to come here?
I don't think I'll write any more unless I feel like I have something worth saying.
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