Day 3

Well, it's been an unusual day.  A front is coming in, and weather effects me (S.A.D.)  It's like I can *feel* the change in air pressure.

Anyway, today.  First thing this morning I got a call from Melodie, the hospice lady.  She had not yet received the medical records they need from Duke.  By mid afternoon when I still had not heard anything, I sent another email to the coordinator.  I thought I might have used the wrong email before.  Just before 5:00 I got replies from both of my emails.  He said he had faxed the requested forms (but it was too late in the day to be able to call Melonie to confirm she got it).  Also, he gave me a very detailed explanation of the areas I was unclear about.  The thing is, there's a difference between "actue rejection" (which did not show up in the boncostopy, and is treatable) and "chronic rejection, characterized by progressive decrease in lung function (which he has), and is not treatable.  It's the "chronic rejection" that makes him eligible for hospice.  That also means that if he developed "acute rejection" either it would remain untreated; or he would be discharged from hospice if he got treatment.  But, on hospice, I can't imagine any doctor would order a new bronchostopy anyway.
Now, I just have to wait to hear from the hospice people for the next step.

So, other than that, how was this day?  Last night we were very late getting things started.  Jimmy insists on staying up late (after sleeping all afternoon - knowing he won't sleep all night, especially if he goes to bed too early).  But everything moves slowly; and he almost always decides once he gets up that he has to sit on the commode before bed.  For an HOUR. :(  So, it was actually after 11:00 before I finally got him settled in bed and the dialysis started.  Fortunately, once we got that far, it was a quiet night, no alarms.  
I was SO tired ... I didn't wake up until 8:30!!  I Never get to sleep that late!  But, I had to go take him the early pill, and then get my morning started.

Even after the treatment ended, he didn't want to get up  I ended up getting mad at him.  I realize there are a lot of issues; but he knew perfectly well what he was doing when he chose to just stay in bed "because it feels so good".  It was noon before I finally got him to get up, and got him into the bathroom for a bath.  When he was done, I went in and scrubbed his hair good too.  Then I got him back to the bedroom, where of course he slept the rest of the afternoon.  
I cleaned the bathroom.
And did 3 loads of laundry (actually, there's a load still in the dryer - will fold it tomorrow).

He got up a bit earlier than he usually does from his afternoon nap.  After TGF and the boys came by, I fixed dinner.  Oh, no, wait.  Before that, DSS came by.  That was interesting!  He told Jimmy all about an on-going issue with *other family members*.  I was surprised he told it!    He's very mad; to be honest, I am too.  But, that's a discussion for another time, as long as it doesn't end up effecting Jimmy.

So, that's where we are tonight.  Waiting for the hospice people to review the medical records, and then determine if Jimmy will be admitted or not.

I'm really not very good at waiting!