Day 28

This has been an odd sort of up and down day.  This morning Jimmy didn't want to get up.  When I went in at 10:00, and told him he needed to roll over so I could do B/P, he just ignored me and stayed right where he was, all covered up. I just wasn't in the mood to argue so I left the pills and left the room.  I went on in to get my shower (and slammed the bathroom door.  There's something so satisfying about slamming a door when I'm upset! LOL!)  When I got out, he had gotten up, got dressed, took the pills - and then lay right back down.  
Later I told DGS to go in and talk to him since he wouldn't get up.  I don't know what he said .. but grandpa not only got up, but he walked all the way to the porch (more than twice the distance he normally goes at any one time).  He sat in the rocker on the porch all afternoon - I even took his lunch out there to him.
While he was out there, DGS helped me clean the area around the raised wood porch, and we took a load of trash to the dump.
Jimmy was tired and ready to come in and have the BIPAP on again. 
He ate a good dinner - because I fexed him somethng he likes (chicken wings).  He only eats well if he gets exactly what he wants to eat.  Not always easy!
Just before 9:00 I heard a change in the sound of the BIPAP (I'm in the next room over).  I went in to check, and he announced he was going to bed.  He frequently does that: just announces he is going to do this or that.   Maybe it's mean of me to make him *ask* for help - but as long as he's actually able to understand that and do so, I will hold out for some degree of respect.  But as we were getting him up - much wobblier than usual, but could be still tired from unusual activity - he started talking about how the room at the other end of the house didn't feel right.  When I asked what room he was talking about, he said the one he slept in last night.  
So OK, he's tired, so a bit disoriented.  It still tends to freak me out a bit; but at least I don't get mad at him over that.  I try (as near as I understand from what the therapists have said) to patiently explain that he's just a little mixed up, and what room is where or whatever it is that has him disoriented.  He doesn't really believe me, but he doesn't argue.  Sometimes that's as good as it gets.
So, as I said, a lot of ups and downs.  We know he isn't sick ... we were clearly told yesterday at his clinic visit that he does NOT have any infection.  The doctor discontinued the antibiotics (although only one dose was still left anyway).  
And so it goes.