Friday, November 7, 2014

Day 75

One NEW Day At A TimDay 19 & 2
Day 75
Friday November 7,  2014

I have not felt like writing for awhile now.  When I originally started this blog, I certainly had no idea of the direction it would take in only a year and a half.  I probably should have made the blog private; but because I never actually told anyone about it, I didn’t bother.  As it turned out, it was sort of accidently discovered; and then shared.  Since it wasn’t “private”, I didn’t object.  So can you imagine how disturbing it was to begin to get negative feedback and critical comments.  Not from everyone, of course.  But any at all is a problem.  It means I’m being told that I’m not supposed to ever tell anyone how I feel.  I’m supposed to only be all sunshine and rainbows, a regular Pollyanna.  Well, I have a newsletter for that.  It is a desperately lonely existence to feel like no matter what happens, no one cares; they don’t want to hear about it.  I realize that in general, when someone says “how are you?”, they don’t want an honest answer; they want you to say “fine”.  And the majority of the time I do that, because I do understand that people don’t care.  But there are some people that *should* care  … not everyone … and I wonder if there’s an element of guilt involved; some people (again, I emphasize, not all) want to believe everything really is “fine” so there’s no guilt when they go on about their busy and interesting lives with no thoughts of me at all.
So, that is my convoluted explanation why I just won’t bother to write very often.  Here is a brief update on what’s been going on in my tiny little wordl.
Three weeks ago I went to my 50th high school class reunion.  One lady .. someone I knew by name only in HS … gave me a ride downtown where we took the bus tour of the city (with classmates who have lived and worked here all their lives gave a running commentary on what has and hasn’t changed).  Then we went to one of the nicer parks for a catered picnic.  During the afternoon there was a school tour; but I decided not to do that, as I knew I’d be too tired to enjoy the evening.  I took a nap instead.  Another lady .. one I’ve known since 2nd grade (although we did not run in the same circles) gave me a ride to the (very fancy elegant) dinner.  She was extremely kind, and made sure I was not left standing alone anywhere.  After a bit of roaming and meeting people (and it’s really funny how many people claimed to “remember” me, although in 3 years of HS they never spoke a word to me!).  They found a table with 3 seats so I didn’t have to just stand around and she was free to roam.  Her husband brought me a glass of wine.  When it came time for dinner, she was very careful to take me through the line, tell me what each item was, and serve a plate for me.  Oh my!  It was way too much most excellent food!  The dessert table had many varieties of mini tarts.  She selected a plateful of different ones (and at the end of the evening insisted on wrapping up the ones left for me to take home). 
After the evening, though I did make an effort, I have not remained in touch with anyone.That’s not a surprise.  Merely having graduated together does not automatically mean we have anything in common.

Two weeks ago I had a nice long weekend with my son and his family.  My DIL drove up on Wednesday evening.  On Thursday afternoon we went back to their home.  Friday night was the HS homecoming football game .. DGD16 is in the marching band (although they didn’t perform since the half time was for the homecoming court).  I loved listening to the band!  On Saturday morning DGS13 had a soccer game, which they won.  On Sunday afternoon they had another playoff game.  Sadly, they lost that one; but it was close and they played well. On Monday DIL and I came back here.  She left very early Tuesday morning for a doctor appointment.  She spent Tuesday night in a hotel (partly due to still waiting on information as to whether she needed to come back the next day).   She came back here Wednesday.
Wednesday night she went with DN and I to the church supper.  It was their Halloween night, so there were dozens (maybe hundreds?) of costumes!  We had pizza, and played some bingo (I actually won a game!!  I do not normally win stuff, so that was exciting).   
The next day, Thursday, she headed home.  However, she did wait until afternoon.  I  had planned to go to a senior’s group meeting; but at the last minute a lady called who is the low-vision specialist I had been waiting to hear from.  She wanted to come over, so I didn’t go to the meeting.  My DIL stayed while the lady came.  After going through many different magnifiers, she settled on a very strong one that seemed to work the best.  In the end, she ended up promising me several different “goodies”; but I have to wait for them to be ordered.  She said she would try to get the order in with time for me to have things by Thanksgiving (which is still another 3 weeks off).
That Friday was Halloween, though of course there were no little trick-or-treaters here.  The weekend was what is more normal for me … very quiet and alone.  DN spends most weekends with her boyfriend.  I have mixed feelings there … yes, a lot of the time I feel lonely.  But I do not feel “less lonely” if she’s at home … just more stressed.  I’m always afraid I’m going to say or do something to spark  an “eisode”.  So I try to mostly just stay in my room. 
My room is nice.  It’s huge, and I love my big bright window.  It’s still a bit of a work-in-progress, but I’m ever closer to having it neat and organized, and the things I love most or need most easily accessible.
I did not get to go to church on Sunday.  A marathon had the street (which includes entrance to the parking lot) closed for 2 hours.  And as it turned out, my usual ride wasn’t available anyway.  So, again, a quiet weekend .. which except for Sunday morning is  pretty much usual.
On Monday a man from the blind society (no, wait, that should be “Blind Society” .. it’s their name, not a description!!) came out.  He will be my counselor (hereafter referred to as LS), and we spent over 2 hours going over various paperwork.  At first it looked like I don’t even qualify for assistance … my income seems to be right on the edge.  But he did some calculations, including expenses for health insurance and such … and yes, I do qualify.  I signed 4 or 5 forms officially requesting various aids or services … I don’t even remember everything.  It is quite astonishing what is available (but only in this country, in this city .. most others don’t have the funding for so much help).  I don’t know how long I have to wait for anything;  I do know the classes they have for technical assistance isn’t until March.  So, I wait and see what happens.  One thing LS did, though, is put me in contact with a lady he thought I’d get along with.  I’ve talked to her briefly (she was on the way somewhere), but she said she’d call me later.  So, I wait. 
All those events are out of the ordinary.  My days are in somewhat of a routine now.  DN leaves for work around 8:40.  I wake up when she gets up (usually I’m already awake), and turn my TV on for morning news.  I turn on the computer and do the newsletter.
After she leaves, I get coffee and do up any dishes (usually from supper and her breakfast.  I’ve told her I don’t mind doing that when she’s working … but don’t ever fix herself something to eat and then wallow on the sofa in fromt of the TV and leave me her dishes!). 
I check email, occasionally check other blogs (only family ones, to see …as best I can … pictures).  Occasionally I have email to answer, but not often. (except one dear faithful BFF).
My mornings are organized by “Kelly and Michael” … “Rachel” … “Price Is Right” … noon news … “The Chew”.  For a long time that was followed by “The Talk” … “Let’s Make A Deal”  and “Ellen”.  I’ve begun turning the sound off for those and listening to a book.  Of all the options I have, the CDs from the library are not working out well.  My portable CD player doesn’t seem to have a “pause” option.  But, I can get a couple of books a montn on my Kindle.  And the tape player from the Library for the Blind is working out well …  although I will need to call them to see if I can request specific books or authors.  So far I’m just getting random selections … some of which are good, some not so much.  The player is the easiest of all my options to use … giant buttons, plus every button speaks it’s function!

Not every day follows that exact routine, but most do.  Some days I walk to the bank or the library (usually both on the same day because they’re across the street from each other).  I can walk to the drug store; and if I feel really ambitious, all the way to the grocery store.
Note: I have learned that the best thing for me to do is buy my own “stash” of the things I want … my coffee, snacks, lunch and even some breakfast items.  DN does try, but she is not at all good at managing the grocery budget; and she doesn’t really comprehend buegeting as far as I can tell.  Plus she does a lot of impulse shopping. Sometimes she brings things home that she says she got for me … but she doesn’t ask me first, and it’s sort of hit or miss whether she got something I actually like or would eat.   I worked out a weekly food budget … but she rejected it because she said she didn’t understand the math).

There are also days I have to wlak down to the laundry room.  I try to match doing laundry with taking trash to the dumpster, but trash fills more often than the laundry basket!

On Wednesday nights we go to church for supper and whatever the program is each week.  I’ve resigned myself to paying for DN … she always says she has no money;  but her newest idea is to go with me and sit and watch me eat and say how good it looks.    So I revised my budget .. had to figure out what to cut out … so I can pay for both of us because I don’t want to give it up.
On (most) Thursdays I go to a senior’s meeting.  They meet at the church for lunch and a program of some sort.  They also do a lot of “filed trips”.  A lady picks me up and brings me home; but if she didn’t, I could take a bus since I now know how to be sure the driver lets me off at the right place.
On Sunday morning another niece picks me up around 8:00.  I go to early service, Sunday school, and regular service.  Then she takes me home.
At some point during the week .. usually weekends, unless DS/BIL are coming over, I try to get cleaning done.  I have long since given up hope of DN contributing in any way.  It’s a matter of picking my battles .. and it’s a daily one just to pick up general clutter … such as clear the bathroom counter, or straighten the living room.

Evenings are mostly spent with my TV; and occasionally if there’s nothing I want to watch, (like election results!) I will listen to a book.  I very rarely watch TV in the living room.  DN prefers the room pitch dark, which pretty much limits my going in there at all once the sun goes down.  But truthfully,  my vision is so limited that I do better with my big TV that I can sit closer to.
I also keep a running list of “projects”.  I am slowly chipping away; and none of them are “urgent” (although my goal is to have as many as possible done by Thanksgiving, when some family members will see the apartment for the first time, or the first time “put together”). I try to tackle a few of the items each week … but I have found I get more done if I just go with it when I feel inspired or ambitious and don’t fight it when I’m feeling tired or down or whatever and want to just sit here and rock. 
I rock a lot.  I don’t know why, but that is what helps me cope .. just sit and rock.  Watching TV or listening to a book; occasionally just dozing with Maggie in my lap (though she mostly prefers the window sill unless it gets cold).
At the moment, there are not many projected plans.  I think DN’s boyfriend is coming to supper tonight.  I have no idea if she is going to his house for the weekend or not.  (she recently “broke up” with him for being too boring .. but she requires being “entertained” at all times, and he can’t do that.  But, they’re “working things out” so I really have no idea what the status is now).  Sunday is church.  My DIL has an appointment Tuesday afternoon.  My son and the kids are off Monday and Tuesday, so I don’t know yet what their schedule will be .. may or may not come Monday night (but I suspect not, although it will make a very long exhausting day for DIL).  The kids get to stay with me Tuesday while parents go on to the appointment.  That will be a first, and I hope they won’t be bored.  At 16 and 13, I don’t know how to “entertain” them other than maybe walk up to McD for lunch.
The Wednesday night program is a series .. leading up to Thanksgiving .. on gratitude.  That’s a tough one, but I’m working on it. I have to figure out how to get past so much sadness, frustration, loneliness, discouragemtnt, resentment, and depression.
On Thursday the senior group is going on a tour of a Salvation Army facility (can’t really say that sounds exciting! LOL) and then to Olive Garden for lunch.  That’s a bit out of my budget, but I will tighten somewhere else.
Other than possibly hearing from LS about anything, the next few weeks just repeat the same pattern (except senior group won’t have field trips every week of course).


I have taken up a huge chunk of this morning updating .. don’t expect it again any time soon! J

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